Long-term conditions
Living with a long-term condition
Whether it is your own long-term condition or one you help someone manage, the harder days take planning, and life can narrow without anyone noticing. TIWANI is built to help you keep track of what helps.
It is private and non-clinical. It helps you prepare and share, it suggests rather than instructs, and it points you to trusted UK organisations and your own care team.
How TIWANI helps
Plan for the harder days and the big appointments
Turn your own experience of the condition into a short plan for what takes preparation: a clinic visit, a flare, a return to work. TIWANI suggests; you stay in charge.
Share what works in one tap
A Continuity Card gives a new clinician, an employer, or someone supporting you a clear summary of what helps and what to avoid, without starting the story over each time. No personal data travels in the link.
A private read on whether life is holding
Living with a long-term condition can slowly narrow what you do. Quick check-ins build a simple, private signal of whether life is steady or shrinking, so a slow change is easier to spot.
Trusted next steps when things get heavy
If an area has been under pressure, TIWANI nudges you, gently, toward trusted organisations and your own care team. It is not medical advice; it points you to it.
Trusted information and support
TIWANI is not the source of this guidance, these organisations are. Each link opens an official or established UK service in a new tab.
Health and care
Money and work
- GOV.UK: Personal Independence Payment (PIP)Help with extra costs of a long-term health condition or disability for working-age adults.(opens in a new tab)
- GOV.UK: Employment and Support Allowance (ESA)Financial support if a health condition or disability affects how much you can work.(opens in a new tab)
- GOV.UK: financial help if you are disabledAn overview of the benefits, grants, and concessions you may be entitled to.(opens in a new tab)
Rights, advice, and carer support
- Disability Rights UKInformation and advice on rights, benefits, work, and independent living, led by disabled people.(opens in a new tab)
- Citizens AdviceFree, confidential advice on benefits, work, housing, and more, in person and online.(opens in a new tab)
- Carers UKAdvice and support if you care for someone living with a long-term condition.(opens in a new tab)
Explore who else TIWANI is for
Help us build TIWANI
TIWANI is built by a small team for families who carry more than their share. If you would like to help us keep building it, you can register your interest in supporting our work. Donations are not open yet, and we will be clear about how any support is used.